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Information offerThe Erfocentrum has expertise on various technical and practical communication strategies to inform the public about hereditary disorders, perinatal screening and medical biotechnology. Third parties can profit of our knowledge!Database with genetic disordersThe greater part of the known genetic disorders is presented on the web in an accessible easy-to-understand fashion. The information is build up following a proof of principle concept that is appreciated by the over 1.1 mln visitors that consult the database on a yearly basis.Medical biotechnologyAs part of the Erfocentrum function as an information and knowledge centre around medical biotechnology, dossiers around all biotechnological techniques have been developed, including DNA microarry, (DNA) vaccines, stem cells, recombinant DNA, antibodies and gene therapy.Online decision aid pregnancy, life style and geneticsThe Erfocentrum has expertise in developing decision aids with health experts, providing people powerful tools to inform themselves and if necessary take action.Digital animations about genetic testingIn order to present the information about the genetics in a way that it is appreciated by various target groups, it is visualized through digital animations as well.Online patient guide genetic counsellingThe corporation with the Dutch Clinical Genetic Centres, is emphasized by the online guide people can be consulted prior to a ‘real life’ genetic consult.Video-interviews with scientists and patientsIn order to make perfectly clear who is the sender of the information, interviews with scientists and patients have been published online.Dictionary technical and medical termsDictionaries explaining biomedical and genetic jargon can upgrade the quality of websites. The Erfocentrum has dictionaries and the necessary tools and knowledge to apply them on websites.News-serviceThe Erfocentrum has experience in organising and updating public news services around genetics. These services can actualize websites and emphasize the role of websites and its related organisations as important information sources.National public information initiativesThe Erfocentrum is appreciated by the Dutch government and field parties, including patients as the Dutch national resource and information centres on heredity and genetic disorders and on medical biotechnology. The Erfocentrum coordinates and realizes the national public information initiatives about prenatal screening during pregnancy, the use of folic acid before and during pregnancy and provides information about genetic testing right after labour.
© Stichting Erfocentrum 2001-2008 / Disclaimer
Het Erfocentrum is het Nationale Kennis- en Voorlichtingscentrum Erfelijkheid, Zwangerschap en Medische Biotechnologie. Het Erfocentrum wordt mede mogelijk gemaakt door de Centra voor Klinische Genetica en donaties.
Het Erfocentrum is een non-profit organisatie en kan ook uw steun goed gebruiken. Steun ons!
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PUBLIC INFORMATION
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